Here, you can find detailed information about the privacy notices for each sub-study of UK-REACH. These notices outline how participant data is collected, stored, and used, ensuring transparency and compliance with data protection regulations. Please review them to understand how your information is handled within each sub-study.
The University of Leicester’s Department of Respiratory Sciences is leading the UK Research Study into Ethnicity and COVID-19 Outcomes in Healthcare Workers (UK-REACH) and the Increasing retention of healthcare staff from ethnic minority groups (I-CARE) sub study investigating in which contexts and why are staff from minoritised groups more likely to leave or stay within NHS workforce post-pandemic compared to white British groups. This research study is a partnership of leading researchers and clinicians with national organisations including the General Medical Council (GMC), Nursing and Midwifery Council, Royal Colleges and ethnic minority healthcare worker associations. The I-CARE sub-study is co-led by University College London.
The University of Leicester is the Data Controller for your information. Further information about the University can be found here: www.le.ac.uk/
The University's Data Protection Officer is: Parmjit Singh Gill, Data Protection Officer and Commercial Lawyer, University Of Leicester, University Road, Leicester, LE1 7RH. Email: DPO@leicester.ac.uk
This privacy notice explains what information we are collecting, how we will use this information in this study and what rights participants have in relation to their information
We will only collect and use your information if you have voluntarily agreed to participate in this study and have completed participant consent forms in accordance with ethical requirements and to meet legal obligations relating to confidentiality.
The information we will collect directly from you in the form of a questionnaire includes:
If you have consented for linkage to your health records we will also receive and use the following special category information provided by the NHS and other partners:
If you agree we will also :
The main purpose of UK-REACH research study is to identify and understand if, how, and why, ethnicity affects clinical outcomes from COVID-19 in healthcare workers. In Work Package 2 we will specifically study healthcare workers and people who work in healthcare settings so that we can understand :
The I-CARE study builds on the UK-REACH cohort study. The main purpose of the I-CARE study is to improve our understanding of the personal and work-related factors that are related to healthcare workers’ intentions to change or leave their jobs, and sickness absence. In particular, we wish to understand how these factors might differ for staff from minoritised groups (focusing on ethnicity and migration status), and to explore potential reasons for this.
Our purpose is also to carry out this research about healthcare workers over a long period so that this can be used to answer further research questions quickly to help improve clinical outcomes for healthcare workers in the long term. We will therefore continue to collect data about your health by extracting information from your past and future NHS routine health care records until 2045 if you have consented to this.
We will use your information to enable us to answer the main UK-REACH and I-CARE related research questions we have set out above.
We will do this in a way that protects your identity as follows:
The University has technical and organisational measures in place to ensure that the data used in this research is securely stored and only used for the purposes of this research. It also requires the other Universities who are collaborating with us in this study, and other partners who will provide, or process participant information to have their own technical and organisational measures in place to comply with Data Protection Legislation. We will not be using the data to record, learn or decide something about you.
Due to the nature of the study, there will be “profiling” of information including demographics, those who have medical conditions including Covid 19 outcomes and all participants who are in specific at-risk groups. This will allow us to be more precise in the way we study the impact of ethnicity and other demographic factors on the clinical and career outcomes in healthcare workers, in line with the purposes of the study.
The UK-REACH and I-CARE research study does not involve automated decision-making.
The UK LLC Privacy notice can be accessed here: Privacy Notice | UK Longitudinal Linkage Collaboration (ukllc.ac.uk)
The legal basis for the processing of participant information that we are collecting and using for the study is Public Task as set out in the Data Protection Act 2018 and GDPR Article 6.1(e). Research is a public task that the University of Leicester performs in the public interest, and is part of its core functions as a University.
Our additional legal basis for processing special category information are that:
This UK-REACH and I-CARE longitudinal cohort study involves research and delivery partners, such as other Universities, and other information processing operations. The following is a list of some of the organisations we are sharing participant information with, but is not an exhaustive list of all those who we may need to involve over the life of the study:
We are also required to provide progress reports and summarised research information to our grant funders and the Department of Health and Social Care but this will not include any information about individual participants.
We will only share with all these parties the minimum information that is necessary for them to undertake the task they are performing. We will not share information that identifies participants such as their name and contact information with people who do not need to know this.
Anonymised information means that a person can no longer be identified from the information and it is not personal information for the purposes of Data Protection Legislation.
As UK-REACH is a longitudinal research study the information held by UK LLC SeRP UK Data centre will be retained for 25 years.
For other information held by Leicester as out below, unless otherwise stated, all the data held for this study will be deleted after 25 years.
Under Data Protection legislation, individuals normally have rights in relation to the personal information we hold about them. For the purposes of research, where such individual rights would seriously impair research outcomes, such rights are limited.
In this UK-REACH and I-CARE research study, we need to limit participant’s rights and are relying on the exemptions in Schedule 2 Part 6 paragraph 27 of the Data Protection Act 2018 because we are processing this information for scientific research in accordance with GDPR Art. 89(1) and Approved Medical Research covered by s19 Data Protection Act 2018.
Prior to applying these exemptions, we have carried out a Data Protection Impact Assessment and taken into account:
We have concluded that the exercise of rights by participants would seriously impair the achievement of the Study objectives and the exemptions are necessary to enable us to fulfil our public health research purposes.
Whilst participants involved in this research may withdraw from the study at any time they will not be able to exercise their rights to access their personal information, to request correction of inaccurate information or erasure of their information, to restrict processing of information or to object to our processing of their information even if they leave the study. GDPR Articles 15,16,17,18 and 21 will not apply.
If you withdraw from the UK-REACH and I-CARE longitudinal cohort study at any stage, we will keep the information we have already obtained but, to safeguard your rights, we will use the minimum personally identifiable information possible.
If you wish to ask questions about our use of this data or your rights, you may contact Information Assurance Services by email at ias@leicester.ac.uk or the University’s Data Protection Officer by email at DPO@leicester.ac.uk.
Anyone can raise concerns about how their information has been processed with the Information Commissioner’s Office (ICO).
The ICO may be contacted:
By Post addressed to: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF.
By telephone: 0303 123 1113.
By Email: contact can be made by accessing www.ico.org.uk
The University of Leicester’s Department of Respiratory Sciences are conducting a study to understand why healthcare workers (HCWs) may wish to leave or change their jobs. In particular, we wish to focus on the experiences of healthcare staff from minoritised groups, especially in terms of ethnicity and migration status. We are calling this study I-CARE (Increasing retention of healthcare staff from ethnic minority groups) and it is a continuation of the UK-REACH study (United Kingdom Research study into Ethnicity And COVID-19 outcomes in healthcare workers) which started during the pandemic in 2020.
In Work Packages 4 and 5 the University of Oxford and University College London (UCL) are our collaborators in undertaking research.
The University of Leicester is the Data Controller for your information. Further information on the University can be found here: https://le.ac.uk/.
The University’s Data Protection Officer is: Parmjit Singh Gill, Data Protection Officer, University Of Leicester, University Road, Leicester, LE1 7RH. Email: DPO@leicester.ac.uk
This privacy notice explains what information we are collecting, how we will use this information in this study and what rights participants have in relation to their information
We are collecting your personal information (name, email and phone number) as part of our registration process. This information will only be used for administrative purposes and not for research.
We will only collect and use your information if you have voluntarily agreed to participate in this study and have completed participant consent forms in accordance with ethical requirements and to meet legal obligations relating to confidentiality.
The information we will collect directly from you in the form of demographic questionnaire for WP4 includes:
The information we may document from your views expressed during interviews includes the following:
If you agree, we will also retain your contact details so that we can invite you to take part in additional studies.
The aim of the I-CARE study is to improve our understanding of the personal and work-related factors that are related to healthcare workers’ intentions or actions to change or leave their jobs. In particular, we wish to understand how these factors might differ for staff from minoritised groups (focusing on ethnicity and migration status), and to explore potential reasons for this. The I-CARE study builds on the UK-REACH study. Our specific research questions are:
Participation will be anonymous and confidential
We will use your information to enable us to answer the main UK-REACH I-CARE related research questions for WP4&5 that we have set out above.
The safety and security of participants’ data is of the utmost importance to the study team. There will be strict mechanisms in place for data storage and access, and you will not be identifiable in research outputs. A small number of the research team will have access to your contact details to arrange, carry out and transcribe interview and make contact with you in the future if you have consented to this.
Your decision to participate will be confidential, and anything you say will also be confidential, and the information you give will be anonymised (so no personal data about you is shared). Your trust/employer will not be told that you have taken part in this research. In discussion with the Co-Principal Investigators and UK-REACH I-CARE Core Management Group, we may make information from the study, labelled only with unique codes, available to researchers approved by the UK-REACH I-CARE the Core Management Group. This information will not identify you and identifiable information will be kept separate from the data. Approved researchers will be required to adhere to strict data governance procedures detailed on the UK-REACH website www.uk-reach.org.
If you are taking part in the storytelling activity, you may be concerned that you could be identified from your audio story. It is not possible to completely eliminate this risk; however this risk will be very small. You can choose which parts of your story to tell, and which to leave out (you may wish to leave out anything you think could identify you). Your audio story resource will also be anonymised. This means that your name and any other identifying details about you will be changed (e.g. about your job, the place that you work or live, about your family, colleges and friends etc); and you can also choose to have your story voiced by a professional narrative practitioner if you wish. You will have the chance to work with the professional narrative practitioner to review your story and remove anything that you think might identify you. You will have the opportunity to approve the final story.
All the collaborating Universities have technical and organisational measures in place to ensure that the data used in this research is securely stored and only used for the purposes of this research.
Data collected during the study may be looked at by individuals from regulatory authorities, these bodies have their own technical and organisational measures in place to comply with Data Protection Legislation.
We will not be using the data to record, learn or decide something about you.
WP4 and 5 of the UK-REACH I-CARE research study does not involve automated decision-making.
The legal basis for the processing of participant information that we are collecting and using for the study is Public Task as set out in the Data Protection Act 2018 and GDPR Article 6.1(e). Research is a public task that the University of Leicester performs in the public interest, and is part of its core functions as a University.
Our additional legal basis for processing special category information is that:
Access to transcripts or any files containing identifiable and/or potentially sensitive information will not be authorised beyond the research team comprising staff from the University and Leicester, UCL and University of Oxford.
We will be sharing the audio recording of interviews and focus groups with a third part for the purpose of enabling them to be transcribed. This will be covered by a contract including terms to protect your privacy.
Anonymised information means that a person can no longer be identified from the information and it is not personal information for the purposes of Data Protection Legislation.
All the information being collected in WP4 and 5 will be held by the University and unless otherwise stated, the information will be held for and deleted after 6 years:
Under Data Protection legislation, individuals normally have rights in relation to the personal information we hold about them. For the purposes of research, where such individual rights would seriously impair research outcomes, such rights are limited.
In this UK-REACH I-CARE WP4&5 research study, we need to limit participant’s rights and are relying on the exemptions in Schedule 2 Part 6 paragraph 27 of the Data Protection Act 2018 because we are processing this information for scientific research in accordance with GDPR Art. 89(1) and Approved Medical Research covered by s19 Data Protection Act 2018.
Prior to applying these exemptions, we have carried out a Data Protection Impact Assessment and taken into account:
We have concluded that the exercise of rights by participants would seriously impair the achievement of the Study objectives and the exemptions are necessary to enable us to fulfil our public health and scientific research purposes.
How will this affect the rights of participants?Whilst participants involved in this research may withdraw from the study at any time they will not be able to exercise their rights to access their personal information, to request correction of inaccurate information or erasure of their information, to restrict processing of information or to object to our processing of their information even if they leave the study. GDPR Articles 15,16,17,18 and 21 will not apply.
If you withdraw from the project, we will keep the information we have already obtained but, to safeguard your rights, we will use the minimum personally identifiable information possible.
If you wish to ask questions about our research please contact Laura.Nellums@Nottingham.ac.uk
If you wish to ask questions about our use of this data or your rights, you may contact Information Assurance Services by email at ias@leicester.ac.uk or the University’s Data Protection Officer by email at DPO@leicester.ac.uk
Anyone can raise concerns about how their information has been processed with the Information Commissioner’s Office (ICO).
The ICO may be contacted:
By Post addressed to: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF.
By telephone: 0303 123 1113.
By Email: contact can be made by accessing www.ico.org.uk
The University of Leicester’s Department of Respiratory Sciences is leading the UK Research Study into Ethnicity and COVID-19 Outcomes in Healthcare Workers(UK-REACH). This research study is a partnership of leading researchers and clinicians with national organisations including the General Medical Council (GMC), Nursing and Midwifery Council, Royal Colleges and ethnic minority healthcare worker associations.
The University of Leicester is the Data Controller for your information. Further information about the University can be found here: www.le.ac.uk/
The University's Data Protection Officer is: Parmjit Singh Gill, Data Protection Officer and Commercial Lawyer, University Of Leicester, University Road, Leicester, LE1 7RH. Email: DPO@leicester.ac.uk
This privacy notice explains what information we are collecting, how we will use this information in this study and what rights participants have in relation to their information.
We will only collect and use your information if you have voluntarily agreed to participate in this study and have completed participant consent forms in accordance with ethical requirements and to meet legal obligations relating to confidentiality.
The information we will collect directly from you in the form of questionnaires for WP2 includes:
We will also receive and use the following special category information provided by the NHS and other partners:
If you agree we will also :
As COVID-19 is a new disease, the main purpose of this UK-REACH research study is to identify and to understand if, how, and why, ethnicity affects clinical outcomes from COVID-19 in healthcare workers. In Work Package 2 we will specifically study healthcare workers and people who work in healthcare settings so that we can understand :
Our purpose is also to carry out this research about healthcare workers over a long period so that this can be used to answer further research questions quickly to help improve clinical outcomes for healthcare workers in the long term. We will therefore continue to collect data about your health by extracting information from your past and future NHS routine health care records for 25 years.
We will use your information to enable us to answer the main UK-REACH related research questions we have set out above.
We will do this in a way that protects your identity as follows:
The University has technical and organisational measures in place to ensure that the data used in this research is securely stored and only used for the purposes of this research. It also requires the other Universities who are collaborating with us in this study, and other partners who will provide, or process participant information to have their own technical and organisational measures in place to comply with Data Protection Legislation. We will not be using the data to record, learn or decide something about you.
Due to the nature of the study, there will be “profiling” of information including demographics, those who have medical conditions including Covid 19 outcomes and all participants who are in specific at-risk groups. This will allow us to be more precise in the way we study the impact of ethnicity on the clinical outcomes of COVID-19 on healthcare workers, in terms of the purposes of the study.
WP2 of the UK-REACH research study does not involve automated decision-making.
The UK LLC Privacy notice can be accessed here: Privacy Notice | UK Longitudinal Linkage Collaboration (ukllc.ac.uk)
The legal basis for the processing of participant information that we are collecting and using for the study is Public Task as set out in the Data Protection Act 2018 and GDPR Article 6.1(e). Research is a public task that the University of Leicester performs in the public interest, and is part of its core functions as a University.
Our additional legal basis for processing special category information are that:
This UK-REACH WP2 study involves research and delivery partners, such as other Universities, and other information processing operations. The following is a list of some of the organisations we are sharing participant information with, but is not an exhaustive list of all those who we may need to involve over the life of the study:
We are also required to provide progress reports and summarised research information to our grant funders and the Department of Health and Social Care but this will not include any information about individual participants.
We will only share with all these parties the minimum information that is necessary for them to undertake the task they are performing. We will not share information that identifies participants such as their name and contact information with people who do not need to know this.
Anonymised information means that a person can no longer be identified from the information and it is not personal information for the purposes of Data Protection Legislation.
As UK-REACH WP2 is a long COVID research study the information held by UK LLC SeRP UK Data centre will be retained for 25 years.
For other information held by Leicester as out below, unless otherwise stated, all the data held for this study will be deleted after 25 years.
Under Data Protection legislation, individuals normally have rights in relation to the personal information we hold about them. For the purposes of research, where such individual rights would seriously impair research outcomes, such rights are limited.
In this UK-REACH WP2 research study, we need to limit participant’s rights and are relying on the exemptions in Schedule 2 Part 6 paragraph 27 of the Data Protection Act 2018 because we are processing this information for scientific research in accordance with GDPR Art. 89(1) and Approved Medical Research covered by s19 Data Protection Act 2018.
Prior to applying these exemptions, we have carried out a Data Protection Impact Assessment and taken into account:
We have concluded that the exercise of rights by participants would seriously impair the achievement of the Study objectives and the exemptions are necessary to enable us to fulfil our public health research purposes.
Whilst participants involved in this research may withdraw from the study at any time they will not be able to exercise their rights to access their personal information, to request correction of inaccurate information or erasure of their information, to restrict processing of information or to object to our processing of their information even if they leave the study. GDPR Articles 15,16,17,18 and 21 will not apply.
If you withdraw from the WP2 study at any stage, we will keep the information we have already obtained but, to safeguard your rights, we will use the minimum personally identifiable information possible.
If you wish to ask questions about our use of this data or your rights, you may contact Information Assurance Services by email at ias@leicester.ac.uk or the University’s Data Protection Officer by email at DPO@leicester.ac.uk.
Anyone can raise concerns about how their information has been processed with the Information Commissioner’s Office (ICO).
The ICO may be contacted:
By Post addressed to: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF.
By telephone: 0303 123 1113.
By Email: contact can be made by accessing www.ico.org.uk
The University of Nottingham, working in collaboration with Leicester’s Department of Respiratory Sciences, are conducting a UK Research Study into Ethnicity and COVID-19 Outcomes in Healthcare Workers. This research study is a partnership of leading researchers and clinicians with national organisations including the General Medical Council (GMC), Nursing and Midwifery Council, Royal Colleges and ethnic minority healthcare worker associations.
The University of Leicester is the Data Controller for your information. Further information on the University can be found here: https://le.ac.uk/.
The University’s Data Protection Officer is: Elisabeth Taoudi, Data Protection Officer and Commercial Lawyer, University Of Leicester, University Road, Leicester, LE1 7RH. Tel: 0116 229 7640. Email: et177@leicester.ac.uk.
This privacy notice explains what information we are collecting, how we will use this information in this study and what rights participants have in relation to their information.
In UK-REACH study Work Package 4 (WP4) we are collection information from people who are:
We will only collect and use your information if you have voluntarily agreed to participate in this study and have completed participant consent forms in accordance with ethical requirements and to meet legal obligations relating to confidentiality.
The information we will collect directly from you in registration, consent forms and in the form of demographic data template questionnaires for WP4 includes:
The information we may document from your views expressed during interviews includes the following:
If you agree, we will also retain your contact details so that we can invite you to take part in additional studies.
As COVID-19 is a new disease, the main purpose of this UK-REACH research study is to identify and to understand if, how, and why, ethnicity affects clinical outcomes from COVID-19 in healthcare workers in order to understand how participant’s life experiences (within and outside of healthcare settings) may shape their perspectives on risk factors, challenges, fears, or helpful resources during the COVID-19 pandemic.
In Work Package 4 we will conduct interviews and focus groups to gather experiences during COVID-19, including your views, challenges you have experienced, or things you perceive have put you or others at risk.
The aim of the interviews is to understand:
Participation will be anonymous and confidential
We will use your information to enable us to answer the main UK-REACH related research questions for WP4 we have set out above.
We will do this in a way that protects your identity as follows:
If preferred, participants may also write their responses to the questions in the topic guide, rather than provide them orally.
Both the Universities of Leicester and Nottingham have technical and organisational measures in place to ensure that the data used in this research is securely stored and only used for the purposes of this research.
Individuals from regulatory authorities may look at data collected during the study; these bodies have their own technical and organisational measures in place to comply with Data Protection Legislation.
We will not be using the data to record, learn or decide something about you.
WP4 of the UK-REACH research study does not involve automated decision-making or profiling we will
The legal basis for the processing of participant information that we are collecting and using for the study is Public Task as set out in the Data Protection Act 2018 and GDPR Article 6.1(e). Research is a public task that the University of Leicester performs in the public interest, and is part of its core functions as a University.
Our additional legal basis for processing special category information is that processing is necessary:
Access to original transcripts or any files containing identifiable and/or potentially sensitive information will be limited to members of the research team comprising staff from the Universities of Leicester and Nottingham.
We will be sharing information with:
We are also required to provide progress reports (including anonymised participant recruitment information) and summarised research information to our grant funders and the Department of Health and Social Care but this will not include any information about individual participants.
We will only share with all these parties the minimum information that is necessary for them to undertake the task they are performing. We will not share information that identifies participants such as their name and contact information with people who do not need to know this.
Anonymised information means that a person can no longer be identified from the information and it is not personal information for the purposes of Data Protection Legislation.
All the information being collected in WP4 will be processed and unless otherwise stated, the information will be held for and deleted after 5 years:
Under Data Protection legislation, individuals normally have rights in relation to the personal information we hold about them. For the purposes of research, where such individual rights would seriously impair research outcomes, such rights are limited.
In this UK-REACH WP4 research study, we need to limit participant’s rights and are relying on the exemptions in Schedule 2 Part 6 paragraph 27 of the Data Protection Act 2018 because we are processing this information for scientific research in accordance with GDPR Art. 89(1) and Approved Medical Research covered by s19 Data Protection Act 2018.
Prior to applying these exemptions, we have carried out a Data Protection Impact Assessment and taken into account:
We have concluded that the exercise of rights by participants would seriously impair the achievement of the Study objectives and the exemptions are necessary to enable us to fulfil our public health and scientific research purposes.
How will this affect the rights of participants?Whilst participants involved in this research may withdraw from the study at any time they will not be able to exercise their rights to access their personal information, to request correction of inaccurate information or erasure of their information, to restrict processing of information or to object to our processing of their information even if they leave the study. GDPR Articles 15,16,17,18 and 21 will not apply.
If you withdraw from the project, we will keep the information we have already obtained but we will protect your rights in our research analysis since this will only involve processing information that has been pseudonymised or use of anonymised transcripts.
If you wish to ask questions about our research please contact Laura.Nellums@Nottingham.ac.uk
If you have concerns or wish to complain about our use of this data in this research or your rights, please first contact Information Assurance Services by email at ias@leicester.ac.uk or the University’s Data Protection Officer by email at et177@leicester.ac.uk. In any communication, please provide the project title (“UK-REACH, Work Package 4”) and detail the nature of your concern or complaint.
Anyone can raise concerns about how their information has been processed with the Information Commissioner’s Office (ICO).
The ICO may be contacted:
By Post addressed to: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF.
By telephone: 0303 123 1113.
By Email: contact can be made by accessing www.ico.org.uk
The University of Edinburgh, in conjunction with the University of Leicester’s Department of Respiratory Sciences are conducting a UK Research Study into Ethnicity and COVID-19 Outcomes in Healthcare Workers. This research study is a partnership of leading researchers and clinicians with national organisations including the General Medical Council (GMC), Nursing and Midwifery Council, Royal Colleges and ethnic minority healthcare worker associations.
The Universities of Edinburgh and Leicester are Joint Data Controllers for your information in Work package 3. Further information about Edinburgh can be found here: https://ed.ac.uk/ and about Leicester here: https://le.ac.uk/
Our Data Protection Officers are:
Edinburgh: Dr Rena Gertz. Email: Rena.Gertz@ed.ac.uk
Leicester: Elisabeth Taoudi, Data Protection Officer and Commercial Lawyer, University Of Leicester, University Road, Leicester, LE1 7RH. Tel: 0116 229 7640. Email: et177@leicester.ac.uk
This privacy notice explains what information we are collecting, how we will use this information in this study and what rights participants have in relation to their information
In UK-REACH study Work Programme 3 (WP3) we are collecting information from people who are:
We will only collect and use your information if you have voluntarily agreed to participate in this study and have completed participant consent forms in accordance with ethical requirements and to meet legal obligations relating to confidentiality.
The information we will collect directly from you in the consent form and the demographic data template questionnaires for WP3 includes:
The information we may document from your views expressed during interviews includes the following:
If you agree, we will retain your contact information to enable us to invite you to take part in additional studies.
As COVID-19 is a new disease, the main purpose of this UK-REACH research study is to identify and to understand if, how, and why, ethnicity affects clinical outcomes from COVID-19 in healthcare workers in order to inform response strategies to reduce COVID-19 morbidity and mortality, and poor mental health outcomes in these individuals.
In Work Package 3 we will conduct interviews to investigate the ethical and legal implications of linking professionals' registration data to healthcare data through interviews with participants.
The aim of the interviews is to understand the perceptions of health care workers around key concerns, such as:
Our purpose is to gather views on protection measures that can or should be put in place by law or policy (e.g. privacy protections, human rights, equality rights) to adequately protect research participants (and the broader community, both BAME and otherwise).
Participation will be anonymous and confidential.
We will use your information to enable us to answer the main UK-REACH related research questions we have set out above.
We will do this in a way that protects your identity as follows:
Both the University of Leicester and the University of Edinburgh have technical and organisational measures in place to ensure that the data used in this research is securely stored and only used for the purposes of this research.
We will not be using the data to record, learn or decide something about you.
WP3 of the UK-REACH research study does not involve automated decision-making or profiling.
The legal basis for the processing of participant information that we are collecting and using for the study is Public Task as set out in the Data Protection Act 2018 and GDPR Article 6.1(e). Research is a public task that the Universities of Leicester and Edinburgh perform in the public interest, and is part of their core functions as Universities.
Our additional legal basis for processing special category information is that processing is necessary for reasons of public interest in the area of public health, specifically relating to COVID- 19, as set out in the Data Protection Act 2018 and GDPR Article 9.2(i).
Only members of the UK research team for WP3 can access transcripts or any files containing identifiable and/or potentially sensitive information will not be authorised beyond the research team.
We will share information with:
We are also required to provide progress reports to our grant funders and the Department of Health and Social Care and because UK-REACH study is classed as Urgent Public Health Research this includes information about participant recruitment as well as summarised research information. However, this will not include any identifiable information about individual participants.
We will only share with all these parties the minimum information that is necessary for them to undertake the task they are performing. We will not share information that identifies participants such as their name and contact information with people who do not need to know this.
Anonymised information means that a person is cannot be identified from the information and it is not personal information for the purposes of Data Protection Legislation.
Information processed the Universities of Leicester and Edinburgh is set out below, and unless otherwise stated, the information will be held for, and deleted after 5 years:
Under Data Protection legislation, in addition to the right to be informed, as a participant you have the following rights in relation to the personal identifiable information we have collected and hold about you as part of this research study:
If you withdraw from the project, we will keep the information we have already obtained but, to safeguard your rights, we will use the minimum personally identifiable information possible.
If you have concerns or wish to complain about our use of your personal information in this research study please first contact Prof Niamh Nic Shuibhne, Director of Research, School of Law, University of Edinburgh: +44 (0)131 650 2049; niamh.nicshuibhne@ed.ac.uk. In your communication, please provide the project title (“UK-REACH, Work Package 3”) and detail the nature of your concern or complaint.
Alternatively contact one of our Data Protection Officers using the details supplied above or by email to Rena.Gertz@ed.ac.uk or to Elisabeth Taoudi et177@leicester.ac.uk
Anyone can raise concerns about how their information has been processed with the Information Commissioner’s Office (ICO).
The ICO may be contacted:
By Post addressed to: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF.
By telephone: 0303 123 1113.
By Email: contact can be made by accessing www.ico.org.uk
The University of Leicester’s Department of Respiratory Sciences is leading the UK Research Study into Ethnicity and COVID-19 Outcomes in Healthcare Workers (UK- REACH). This research study is a partnership of leading researchers and clinicians with national organisations including the General Medical Council (GMC), Nursing and Midwifery Council, Royal Colleges and ethnic minority healthcare worker associations. The University of Leicester (Leicester) is the Sponsor for this research.
In this sub-study (this Study) we are collaborating with the University of Nottingham (Nottingham), University College London (UCL) and a third party company Focus Games Ltd., to develop and pilot test an online game designed to reduce Covid vaccine hesitancy in health care workers.
Leicester is the Data Controller for your information. Further information on the University can be found here: https://le.ac.uk/ .
The University’s Data Protection Officer is: Parmjit Singh Gill, University of Leicester, University Road, Leicester, LE1 7RH. Tel: 0116 229 7946 Email: dpo@leicester.ac.uk
This privacy notice explains what information we are collecting in this Study, how we will use this information in this study and what rights participants have in relation to their information.
We will only collect and use your information if you have voluntarily agreed to participate in this study and have completed participant consent forms in accordance with ethical requirements and to meet legal obligations relating to confidentiality.
In UK-REACH study Work Package 8 (WP8) we are collecting information at different phases of the study as follows :
Co-development of game:
We will collect contact details of existing members of our Professional Expert Panel.
For the User Testing stage we will be collecting data from people who are:
For the Pilot Study we are collecting information from people who are:
In respect of User Testing we will collect the following information from you:
In respect of the pilot study we will collect the following information from you:
If you participate in interviews or wish to receive a gift voucher in return for your time we will use your name and contact information including telephone/mobile numbers and email address.
The aim of the study is to determine if a low-cost online ‘serious’ game about SARS-CoV-2 is perceived to be acceptable and usable among Health Care Workers (HCWs) from diverse ethnic groups in the UK, and if it changes knowledge, attitudes, and reduces SARS-CoV-2 vaccine hesitancy.
In particular we want to:
User testing will help us to ensure that the game works and is well designed ready for the Pilot study.
We will use your information to enable us to answer the UK-REACH Work Package 8 research questions set out above.
We will do this in a way that protects your identity as follows:
In respect of Co-design:
Collaborator contact details will be stored in the trial master file on the University’s secure drive.
In respect of the User Testing:
In respect of the Pilot Study:
Leicester has technical and organisational measures in place to ensure that your data used in this research is securely stored and only used by those involved in the research for the purposes of this research. It also requires the other Universities who are collaborating with us and will process your personal information to have their own technical and organisational measures in place to comply with UK Data Protection Legislation.
We will not be using the data to record, learn or decide something about you.
No automated decision-making or profiling of individual is involved in this research Study.
The legal basis for the processing of your participant information that we are collecting and using for the study is performance of a task in the public interest (Public Task) as set out in the Data Protection Act 2018 and UK GDPR Article 6.1(e). Research is a public task that Leicester performs in the public interest, and is part of its core functions as a University.
Our additional legal basis for processing your special category information relating to health and ethnicity is that processing is necessary for reasons of public interest in the area of public health, specifically relating to COVID-19, as set out in the Data Protection Act 2018 and GDPR Article 9.2(i) and is necessary for scientific research as set out in the Data Protection Act 2018 and GDPR Article 9.2.j.
This UK-REACH WP8 study involves research and delivery partners, such as other Universities, and other information processing operations. The following is a list of the organisations we are sharing participant information with:
Only anonymised and summarised research reports will be shared with our Stakeholder partners representing the Healthcare professions and healthcare workers. We are also required to provide progress reports and summarised research information to our grant funders and the Department of Health and Social Care but this will not include any information about individual participants.
We will only share with all these parties the minimum information that is necessary for them to undertake the task they are performing. We will not share information that identifies participants such as their name and contact information with people who do not need to know this.
Anonymised information means that a person can no longer be identified from the information and it is not personal information for the purposes of Data Protection Legislation.
Your information will be held for the duration of the Study, around 6 months. At the end of the study an anonymised research dataset will be transferred to the SAIL data centre for storage for ten years, then archived.
Audio recordings of interviews will be deleted after they have been transcribed. Interviewees’ contact details will be deleted once interviews have been transcribed and receipt of vouchers has been confirmed.
For other information held set out below, unless otherwise stated, the information will be held for and deleted after 25 years in line with the UK REACH main study:
Under Data Protection legislation, individuals normally have rights in relation to the personal information we hold about them. For the purposes of research, where such individual rights would seriously impair research outcomes, such rights are limited.
In this UK-REACH WP8 research study, we need to limit participant’s rights and are relying on the exemptions in Schedule 2 Part 6 paragraph 27 of the Data Protection Act 2018 because we are processing this information for scientific research in accordance with GDPR Art. 89(1) and Approved Medical Research covered by s19 Data Protection Act 2018.
Prior to applying these exemptions, we have carried out a Data Protection Impact Assessment for the study and taken into account:
We have concluded that the exercise of rights by participants would seriously impair the achievement of the Study objectives and the exemptions are necessary to enable us to fulfil our public health research purposes.
How will this affect the rights of participants?
Whilst participants involved in this research may withdraw from the study at any time they will not be able to exercise their rights to access their personal information, to request correction of inaccurate information or erasure of their information, to restrict processing of information or to object to our processing of their information even if they leave the study. GDPR Articles 15,16,17,18 and 21 will not apply.
If you withdraw from the project, we will keep the information we have already obtained but, to safeguard your rights, we will use the minimum personally identifiable information possible.
If you have any queries about this research please contact the UK-REACH study team using these contact details: uk-reach@leicester.ac.uk or 07425611865.
If you wish to ask questions about our use of your data or your rights, you may contact Information Assurance Services by email at ias@leicester.ac.uk or the University’s Data Protection Officer by email at dpo@leicester.ac.uk .
Anyone can raise concerns about how their information has been processed with the Information Commissioner’s Office (ICO).
The ICO may be contacted:
By Post addressed to: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF.
By telephone: 0303 123 1113.
By Email: contact can be made by accessing www.ico.org.uk
The University of Leicester’s Department of Respiratory Sciences, are conducting this REACH OUT research study which is funded by the NHS Race and Health Observatory. REACH OUT is a sub-study of the UKRI-DHSC/NIHR-funded research project called “UK-REACH: United Kingdom Research Study into Ethnicity And COVID-19 outcomes in Healthcare workers”. The UK REACH research study is a partnership of leading researchers and clinicians with national organisations including the General Medical Council (GMC), Nursing and Midwifery Council, Royal Colleges and ethnic minority healthcare worker associations.
Leicester is the Data Controller for your information. Further information on the University can be found here: https://le.ac.uk/.
The University’s Data Protection Officer is: Parmjit Singh Gill, University of Leicester, University Road, Leicester, LE1 7RH. Tel: 0116 229 7946 Email: dpo@leicester.ac.uk
This privacy notice explains what information we are collecting, how we will use this information in this REACH OUT Qualitative study and what rights participants have in relation to their information.
In this REACH-OUT qualitative study, we are collecting information from existing UK REACH participants (WP2 and WP4) who consented to be contacted about future studies and who are:
We will only collect and use your information if you have voluntarily agreed to participate in this REACH OUT qualitative study and have completed participant consent forms in accordance with ethical requirements and to meet legal obligations relating to confidentiality.
The information we will collect directly from you in registration, consent forms and in the form of demographic data template questionnaires for this qualitative study includes:
The information we may document from your views expressed during interviews includes the following:
We will retain your contact details so that we can invite you to take part in a second interview this year.
As COVID-19 is a new disease, and there is so much we don’t know about long Covid the main purpose of this REACH-OUT research study is to estimate the prevalence of long COVID among healthcare workers, characterise the syndrome, and understand the impacts of medium-term and post-acute/long COVID illness on the mental, physical, and occupational health of diverse communities of HCWs in the UK, and their work and home lives.
In this particular qualitative study we will carry out one- to –one interviews to enable us to investigate the experiences of HCWs from diverse ethnic backgrounds who have had COVID-19, including long COVID, and the impact on their physical and mental health, work, and wider community and things they perceive have put them or others at risk.
The aim of this study is to understand:
We will use your information to enable us to answer the main REACH-OUT related research questions for this study we have set out above.
We will do this in a way that protects your identity as follows:
The University of Leicester and our collaborators at University of Nottingham and University College London have technical and organisational measures in place to ensure that the data used in this research is securely stored and only used for the purposes of this research.
Individuals from regulatory authorities may look at data collected during the study; these bodies have their own technical and organisational measures in place to comply with Data Protection Legislation.
We will not be using the data to record, learn or decide something about you.
This research study does not involve automated decision-making or profiling. we will
The legal basis for the processing of participant information that we are collecting and using for the study is that processing is necessary for the performance of a task carried out in the public interest (Public Task) as set out in the Data Protection Act 2018 and GDPR Article 6.1(e). Research is a task that the University of Leicester performs in the public interest, and is part of its core functions as a university.
Our additional legal basis for processing special category information is that processing is necessary:
Access to original transcripts or any files containing identifiable and/or potentially sensitive information will be limited to members of the research team comprising staff from the University of Leicester and the transcriber.
We are also required to provide progress reports (including anonymised participant recruitment information) and summarised research information to our grant funders but this will not include any information about individual participants.
We will only share with all these parties the minimum information that is necessary for them to undertake the task they are performing. We will not share information that identifies participants such as their name and contact information with people who do not need to know this.
Anonymised information means that a person can no longer be identified from the information and it is not personal information for the purposes of Data Protection Legislation.
As this sub -study is part of the 25 years Long term UK REACH study all the personally identifiable information being collected in this qualitative study will be processed and unless otherwise stated, the information will be held for and deleted after 25 years:
Under Data Protection legislation, individuals normally have rights in relation to the personal information we hold about them including the right to access, to rectification, to erasure, to restrict or object to processing. However, in this REACH OUT qualitative research study these rights are limited in respect of this research in the following circumstances:
Prior to applying the exception in 1) and the exemptions in 2) above, we have carried out a Data Protection Impact Assessment and taken into account:
We have concluded that the exercise of rights by participants would seriously impair the achievement of the Study objectives and the exemptions are necessary to enable us to fulfil our public health related research purposes.
How will this affect the rights of participants?
Participants involved in this research will not be able to exercise their rights to access their personal information, to request correction of inaccurate information (where they cannot do this themselves) or erasure of their information, to restrict processing of information or to object to our processing of their information even if they leave the study. UK GDPR Articles 15,16,17,18 and 21 will not apply.
If you withdraw from the REACH OUT sub-study, we will keep the information we have already obtained but we will protect your rights in our research analysis since this will only involve processing information that has been pseudonymised or use of anonymised transcripts.
If you wish to ask questions about our research, please contact the research team by email to uk-reach@leicester.ac.uk. In any communication, please provide the project title (“REACH-OUT, Qualitative study”).
If you wish to ask questions about our use of your data or your rights, you may contact Information Assurance Services by email at ias@leicester.ac.uk or the University’s Data Protection Officer by email at dpo@leicester.ac.uk .
Anyone can raise concerns about how their information has been processed with the Information Commissioner’s Office (ICO).
The ICO may be contacted:
By Post addressed to: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF.
By telephone: 0303 123 1113.
By Email: contact can be made by accessing www.ico.org.uk
The University of Leicester’s Department of Respiratory Sciences, are conducting this REACH OUT research study which is funded by the NHS Race and Health Observatory. REACH OUT is a sub-study of the UKRI-DHSC/NIHR-funded research project called “UK-REACH: United Kingdom Research Study into Ethnicity And COVID-19 outcomes in Healthcare workers”. The UK REACH research study is a partnership of leading researchers and clinicians with national organisations including the General Medical Council (GMC), Nursing and Midwifery Council, Royal Colleges and ethnic minority healthcare worker associations.
Leicester is the Data Controller for your information. Further information on the University can be found here: https://le.ac.uk/.
The University’s Data Protection Officer is: Parmjit Singh Gill, University of Leicester, University Road, Leicester, LE1 7RH. Tel: 0116 229 7946 Email: dpo@leicester.ac.uk
This privacy notice explains what information we are collecting, how we will use this information in this REACH OUT Qualitative study and what rights participants have in relation to their information.
In this REACH-OUT qualitative study, we are collecting information from existing UK REACH participants (WP2 and WP4) who consented to be contacted about future studies and who are:
We will only collect and use your information if you have voluntarily agreed to participate in this REACH OUT qualitative study and have completed participant consent forms in accordance with ethical requirements and to meet legal obligations relating to confidentiality.
The information we will collect directly from you in registration, consent forms and in the form of demographic data template questionnaires for this qualitative study includes:
The information we may document from your views expressed during interviews includes the following:
We will retain your contact details so that we can invite you to take part in a second interview this year.
As COVID-19 is a new disease, and there is so much we don’t know about long Covid the main purpose of this REACH-OUT research study is to estimate the prevalence of long COVID among healthcare workers, characterise the syndrome, and understand the impacts of medium-term and post-acute/long COVID illness on the mental, physical, and occupational health of diverse communities of HCWs in the UK, and their work and home lives.
In this particular qualitative study we will carry out one- to –one interviews to enable us to investigate the experiences of HCWs from diverse ethnic backgrounds who have had COVID-19, including long COVID, and the impact on their physical and mental health, work, and wider community and things they perceive have put them or others at risk.
The aim of this study is to understand:
We will use your information to enable us to answer the main REACH-OUT related research questions for this study we have set out above.
We will do this in a way that protects your identity as follows:
The University of Leicester and our collaborators at University of Nottingham and University College London have technical and organisational measures in place to ensure that the data used in this research is securely stored and only used for the purposes of this research.
Individuals from regulatory authorities may look at data collected during the study; these bodies have their own technical and organisational measures in place to comply with Data Protection Legislation.
We will not be using the data to record, learn or decide something about you.
This research study does not involve automated decision-making or profiling. we will
The legal basis for the processing of participant information that we are collecting and using for the study is that processing is necessary for the performance of a task carried out in the public interest (Public Task) as set out in the Data Protection Act 2018 and GDPR Article 6.1(e). Research is a task that the University of Leicester performs in the public interest, and is part of its core functions as a university.
Our additional legal basis for processing special category information is that processing is necessary:
Access to original transcripts or any files containing identifiable and/or potentially sensitive information will be limited to members of the research team comprising staff from the University of Leicester and the transcriber.
We are also required to provide progress reports (including anonymised participant recruitment information) and summarised research information to our grant funders but this will not include any information about individual participants.
We will only share with all these parties the minimum information that is necessary for them to undertake the task they are performing. We will not share information that identifies participants such as their name and contact information with people who do not need to know this.
Anonymised information means that a person can no longer be identified from the information and it is not personal information for the purposes of Data Protection Legislation.
As this sub -study is part of the 25 years Long term UK REACH study all the personally identifiable information being collected in this qualitative study will be processed and unless otherwise stated, the information will be held for and deleted after 25 years:
Under Data Protection legislation, individuals normally have rights in relation to the personal information we hold about them including the right to access, to rectification, to erasure, to restrict or object to processing. However, in this REACH OUT qualitative research study these rights are limited in respect of this research in the following circumstances:
Prior to applying the exception in 1) and the exemptions in 2) above, we have carried out a Data Protection Impact Assessment and taken into account:
We have concluded that the exercise of rights by participants would seriously impair the achievement of the Study objectives and the exemptions are necessary to enable us to fulfil our public health related research purposes.
How will this affect the rights of participants?
Participants involved in this research will not be able to exercise their rights to access their personal information, to request correction of inaccurate information (where they cannot do this themselves) or erasure of their information, to restrict processing of information or to object to our processing of their information even if they leave the study. UK GDPR Articles 15,16,17,18 and 21 will not apply.
If you withdraw from the REACH OUT sub-study, we will keep the information we have already obtained but we will protect your rights in our research analysis since this will only involve processing information that has been pseudonymised or use of anonymised transcripts.
If you wish to ask questions about our research, please contact the research team by email to uk-reach@leicester.ac.uk. In any communication, please provide the project title (“REACH-OUT, Qualitative study”).
If you wish to ask questions about our use of your data or your rights, you may contact Information Assurance Services by email at ias@leicester.ac.uk or the University’s Data Protection Officer by email at dpo@leicester.ac.uk .
Anyone can raise concerns about how their information has been processed with the Information Commissioner’s Office (ICO).
The ICO may be contacted:
By Post addressed to: Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF.
By telephone: 0303 123 1113.
By Email: contact can be made by accessing www.ico.org.uk